Ron and Debbie describe what 8 year old Dylan and his 5 year old sister know about his SMA
Living with SMA
The severity of Spinal Muscular Atrophy (SMA) symptoms varies – some people can move, eat and speak more easily than others. Importantly, children with SMA have normal intellectual and emotional development.
People with SMA either never acquire, or progressively lose, the ability to walk, stand, sit and even move. The severity and rate of disease progression varies greatly depending on SMA type.
Dr. De Vivo describes the disease progression for different SMA types
Esther and Frank describe their daughter’s progression since diagnosis
Debbie and Ron talk about the experiences of their son with Type II SMA
Day to Day Life
SMA can affect all aspects of daily life, including routines, school, sports and careers. Children with SMA, and their siblings, also develop an understanding of the condition.